Review 2020

Please click on the illustrations for an enlarged view.

Site-based Observational Studies

Implementation and execution of mono- or multi-centre non-interventional studies

"Enriched" Studies

Within the scope of enriched studies, the treatment data recorded in ADOReg can be expanded for specific studies

Database Studies

Retrospective analyses from the ADOReg database

The ADOReg in numbers

Patients in the ADOReg


Patients in the registry’s 5 entities


Malignant Melanoma


Basal Cell Carcinoma


Merkel Cell Carcinoma


Squamous Cell Carcinoma


Cutaneous Lymphoma

Study sites


Real world data are becoming increasingly important worldwide

Both in the USA and in Europe, efforts are being made to optimize the use of real world evidence and to increasingly use findings from clinical registers to inform health care research (see e.g. FDA, Framework for FDA’s Real-World Evidence Program, 2018). In the German healthcare system, real world evidence from registry data is also playing an increasingly important role, e.g. for use as a basis for the extended benefit assessment of drugs according to § 35 SGB (see IQWIG, „Rapid Report A19-43“, 10.01.2020).

Cooperation with the ADOReg and its established network of experts is ideally suited for the collection and evaluation of data in dermatological oncology

The requirements of the Institute for Quality and Efficiency in Health Care (IQWIG) regarding the quality of treatment data in clinical registers in Germany are implemented in the ADOReg. By setting the highest standards for the quality of the recorded treatment data, the ADOReg makes significant contributions to the care and contract research for a wide range of stakeholders in order to create a positive added value for all those involved in the healthcare system.


Our goal is to publish the studies conducted in cooperation with the ADOReg in a peer-reviewed journal. If you have any questions regarding the publication process, please contact the Academic Project Advisory Board or the Steering Group (see contact persons) of the ADOReg directly.

Study projects of the ADOReg

The following section provides an overview of current study projects.

Academic projects

Project application to the ADOReg Academic Advisory Board

  • Querying the ADOReg database with the aim of processing a specific scientific question (data export in Excel
  • Application via Word-based application form (link in the download area, see below)
  • Assessment and approval by the ADOReg Academic Advisory Board


  • One application round per year; after the ADO conference
  • Deadline for submitting applications at the end of October of the respective year

Eligible applicants

  • Scientific staff at the dermatological clinics actively participating in the ADOReg; the application process
    should correspond as much as possible to the input effort of the center in the register
  • The application is limited to one application per project manager and application round; exceptions are possible
    after consultation
  • Multi-center applications, e.g. via the ADO committees are preferred

Criteria for the approval of projects

  • Innovative, contemporary and scientifically meaningful questions
  • No questions that are the same or similar to those already applied for at ADOReg (see below for an overview of
    applied ADOReg projects)
  • The parameters required for the project should, if possible, already be available in the register; additional
    parameters must be requested from the centers retrospectively by the requesting project manager with additional
  • Similar project applications from different applicants are brought together by the project advisory board and
    initiated as cooperation projects
  • Publications from ADOReg projects must be provided to the Academic Advisory Board for review before submission;
    the ADOReg centers involved are to be considered as co-authors, among other things according to the included
    number of patients

Contact persons

Steering Group of the ADOReg

The ADOReg Steering Group makes decisions on all relevant issues concerning the operation and further development of the Registry, including decisions on the implementation of contract research and academic research.

Prof. Dr. med. Dirk Schadendorf

Universitätsklinikum Essen, Director of the Department of Dermatology, Venerology and Allergology
+49 (0) 201 723 4342

Prof. Dr. med. Michael Weichenthal

Universitätsklinikum Schleswig-Holstein, Campus Kiel, Senior Physician & Head of the Epidemiology and Statistics Group at the Department of Dermatology, Venerology and Allergology
+49 (0) 431 5971537

Prof. Dr. med. Ralf Gutzmer

Medizinische Hochschule Hannover (MHH), Head of the Skin Tumour Centre Hannover (HTZH)
+49 (0) 511 5320

Dr. Gabriele Haas

IQVIA, Senior Principal, Real World Solutions
+49 (0) 69 6604 4883


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Office: +49 30 800 930 8-30